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<title>Love On Wheelz</title>
<link rel="alternate" type="text/html" href="http://www.loveonwheelz.net/" />
<modified>2008-05-15T23:30:36Z</modified>
<tagline></tagline>
<id>tag:,2008:/76</id>
<generator url="http://www.movabletype.org/" version="3.2">Movable Type</generator>
<copyright>Copyright (c)2008, Rudius Media, LLC</copyright>
<entry>
<title>Parents: The Anti-Drug</title>
<link rel="alternate" type="text/html" href="http://www.loveonwheelz.net/archives/parents_the_antidrug_1.phtml" />
<modified>2008-05-15T23:30:36Z</modified>
<issued>2008-05-15T20:47:50Z</issued>
<id>tag:,2008:/76.6569</id>
<created>2008-05-15T20:47:50Z</created>
<summary type="text/plain">When you were 18 what rules did your parents have? A curfew? Keep your room clean? No drinking, probably. They all seem pretty reasonable, right? Did they also ever try to force to do something you didn&apos;t want to do?...</summary>
<author>
<name>HotWheelz</name>

<email>therealnotfaggyhotwheelz@gmail.com</email>
</author>
<dc:subject>Blog</dc:subject>
<content type="text/html" mode="escaped" xml:lang="en-us" xml:base="http://www.loveonwheelz.net/">
<![CDATA[<p>When you were 18 what rules did your parents have? A curfew? Keep your room clean? No drinking, probably. They all seem pretty reasonable, right? Did they also ever try to force to do something you didn't want to do? Something you felt you should be able to decide for yourself? You probably told them to fuck off, right? And they couldn't do anything, except maybe kick you out.</p>

<p>Recently I've been having problems with my parents. They still think that they should be able to dictate what medications I should take, or the amount of water I should drink. I'd like to think I'm pretty in tune with my body. I'm always the first to know when something is wrong and I know what to do. So I don't think it's terribly unreasonable for me to decide what goes into my body. Especially now that I'm a legal adult. But what can I do when they decide they're going to give me a medicine? Swat it away? Run away? I'm reduced to screaming, "NONONONO!" Like a goddamn child. But they just push it in through the feeding tube. It's frustrating as fuck when you can't have any control over your life. And I guaran-fucking-tee this wouldn't happen if I could walk.<br />
</p>]]>

</content>
</entry>
<entry>
<title>How do you eat?</title>
<link rel="alternate" type="text/html" href="http://www.loveonwheelz.net/archives/how_do_you_eat_1.phtml" />
<modified>2008-05-15T15:51:21Z</modified>
<issued>2008-05-14T05:47:24Z</issued>
<id>tag:,2008:/76.6686</id>
<created>2008-05-14T05:47:24Z</created>
<summary type="text/plain">Sorry for the hiatus there. I was having some issues getting these pics, due to the fact I had no camera. Q. How do you eat? margin-left:10px;margin-right:0px;margin-top:10px;margin-bottom:10px;&quot;&gt;Syringe, tube, and feeding pump. It depends. I can eat food by mouth when...</summary>
<author>
<name>HotWheelz</name>

<email>therealnotfaggyhotwheelz@gmail.com</email>
</author>
<dc:subject>FAQ</dc:subject>
<content type="text/html" mode="escaped" xml:lang="en-us" xml:base="http://www.loveonwheelz.net/">
<![CDATA[<p>Sorry for the hiatus there. I was having some issues getting these pics, due to the fact I had no camera.</p>

<p><em>Q. How do you eat?</em></p>

<p><span style="float:right;<br />
margin-left:10px;margin-right:0px;margin-top:10px;margin-bottom:10px;"><img alt="combo.jpg" src="http://www.loveonwheelz.net/archives/upload/2008/05/combo.jpg" width="356" height="242" /><br><em>Syringe, tube, and feeding pump.</em></span><br />
It depends.  I can eat food by mouth when I get cravings, but not enough to be nutritious. </p>

<p>99% of the time, I use a feeding tube and syringe as shown.  My nurses pour the food into the syringe and let gravity do the rest, which I love because I can feel it going in, and it gives me the feeling of being full.<br><br />
When I use the pump, you turn it on and select the speed (displayed on the screen) you want the food to go, but at any speed it's slow as hell.  </p>

<p>You hang a bag on the pole and put the long plastic tube in a slit in the right side, then the other end of my tube goes through my stomach. The speed depends on how I feel and how long I want it to take.<br />
<span style="float:left;<br />
margin-left:0;margin-right:10px;margin-top:10px;margin-bottom:10px;"><img alt="Feeding%20Pump%20%26%20Neo.JPG" src="http://www.loveonwheelz.net/archives/upload/2008/05/Feeding%20Pump%20%26%20Neo.JPG" width="293" height="243" /><br><em>Neo in Spin Kick Mode.</em></span><br />
The food itself is called <a href="http://www.meadjohnson.com/app/iwp/HCP/Content2.do?dm=mj&id=/HCP_Home/Product_Information/Product_Descriptions/Portagen" target=_blank>Portagen</a>. My cells can't burn fat, so apparently this does some fancy stuff that helps me with that. I'm not sure what it is, I just know it is good for me.  </p>

<p>When the pump is done, it beeps, alerting Neo. At which point, he turns it off with a high-flying spin kick.</p>

<p>If Neo isn't in the mood (he's fickle) the nurse does it.<br />
<br><br><br><br><br><br><br></p>]]>

</content>
</entry>
<entry>
<title>What&apos;s the best thing about having MD and being confined to a wheelchair?</title>
<link rel="alternate" type="text/html" href="http://www.loveonwheelz.net/archives/whats_the_best_thing_about_hav.phtml" />
<modified>2008-03-28T01:11:14Z</modified>
<issued>2008-03-27T14:35:11Z</issued>
<id>tag:,2008:/76.6574</id>
<created>2008-03-27T14:35:11Z</created>
<summary type="text/plain">I tried really hard to think of something for this. I thought about the fact that people do everything for me, but that&apos;s not as cool as it sounds. If I have an itch and everybody is busy, I have...</summary>
<author>
<name>HotWheelz</name>

<email>therealnotfaggyhotwheelz@gmail.com</email>
</author>
<dc:subject>FAQ</dc:subject>
<content type="text/html" mode="escaped" xml:lang="en-us" xml:base="http://www.loveonwheelz.net/">
<![CDATA[<p>I tried really hard to think of something for this. I thought about the fact that people do everything for me, but that's not as cool as it sounds. If I have an itch and everybody is busy, I have to wait. Then I have to tell them exactly where it itches, which is like leading a blind man across the freeway.</p>

<p>Then I thought about the parking. But that is so overdone it's gotten annoying. When you start seeing MySpace quotes and bumper stickers that say, "I'm in it for the parking," you know it's turned into a cliche. Seriously guys, it was mildly amusing for all of five seconds. Stop it. Besides, the spots aren't all that great anyway. The only reason I use them is because I need space for the ramp.</p>

<p>There's really nothing about my condition that I wouldn't gladly give up to be normal. Hell, I'd be happy with complete use of my arms.</p>

<p>So anyway, the best part? Not a damn fucking thing</p>]]>

</content>
</entry>
<entry>
<title>Fear and Rolling in Las Vegas</title>
<link rel="alternate" type="text/html" href="http://www.loveonwheelz.net/archives/fear_and_rolling_in_las_vegas.phtml" />
<modified>2008-03-25T04:29:08Z</modified>
<issued>2008-03-24T15:00:16Z</issued>
<id>tag:,2008:/76.6570</id>
<created>2008-03-24T15:00:16Z</created>
<summary type="text/plain">&quot;YOUR SON IS GOING TO COME BACK WITH HERPES!&quot; Pedro has always had the tendency of revealing too much information to my mother. My face turned three shades of red. I looked at my mom, expecting to see her mouth...</summary>
<author>
<name>HotWheelz</name>

<email>therealnotfaggyhotwheelz@gmail.com</email>
</author>
<dc:subject>Blog</dc:subject>
<content type="text/html" mode="escaped" xml:lang="en-us" xml:base="http://www.loveonwheelz.net/">
<![CDATA[<p>"YOUR SON IS GOING TO COME BACK WITH HERPES!" Pedro has always had the tendency of revealing too much information to my mother. My face turned three shades of red. I looked at my mom, expecting to see her mouth agape. She just smiled and gave a disapproving shake of her head. She tries so hard to be the cool mom, though sometimes I wish she didn't. And maybe Pedro wouldn't tell her everything. I was in Vegas with my family, and Rodrigo and Pedro were there. They had tagged along on our family vacation because they were (and one of them still is) like family. The three of us were going out trolling for pussy.</p>

<p>"Remember guys, we're not supposed to be down <em>there</em>. If they catch us they will send us back <em>here</em>." I nodded at our floor.</p>

<p>"Where did you hear that bullshit rule?"</p>

<p>"Yeah, you're just making stuff up, Saul," Rodrigo added.</p>

<p>"Yeah, you're right." I rolled my eyes.</p>

<p>I held my breath, speed rolling through the casino floor. At one point, a security guard saw us. I looked him in the eye, smiled, gave him a friendly nod and kept going. I gave a sigh of relief as I wheeled through the casino doors. I looked around me, amazed at all neon lights, even though I had been there several times.</p>

<p>"Where do you guys want to go?" Rodrigo asked.</p>

<p>"I don't know. Caesars'?" Pedro had never been to Vegas. He only knew some of the hotels.</p>

<p>"Caesars' is for old people. Lets go to the Mirage. Remember Lety (my mom) said there was a cool nightclub there?" Rodrigo reminded him.</p>

<p><em>Great. These assholes choose the hotel five blocks from here in THIS fucking weather. It's 20 fucking degrees out here. I'm going to freeze to death, </em> I thought.</p>

<p>As I wove through the maze of old Asian ladies, drunken people and stupid people, I started to feel a sharp pain on my driving hand. It was like a thousand needles stabbing me, but I ignored it thinking I could power through it. Then came the numbness. I looked down at my hand. It was turning purple. My limbs stiffen up in the cold, much like normal people; Except more pronounced. Doctors so far can't explain why this is.</p>

<p>"Hey, guys!"</p>

<p>"What?" They kept going.</p>

<p>"Wait!"</p>

<p>"What's wrong?"</p>

<p>"I can't drive anymore. My hand is too cold."</p>

<p>"Come on. We're almost there." Pedro pleaded with me, knowing what I was about to ask.<br />
</p>]]>
<![CDATA[<p>"No, I can't. Can you push me?"</p>

<p>"Yeah, sure."</p>

<p>He took off the break, sighed, and looked at Rodrigo. "Come on, help push this asshole. We only have to go up this walkway and we're there."  They got behind me and started pushing all 400 pounds of my chair up the walkway. I felt like the king of Rome. They grunted while I smiled.</p>

<p>"Goddamn you're heavy"</p>

<p>"Come on, guys. Almost there." I said in a nonchalant way.</p>

<p>We made it into the hotel and sat in a bakery next to the nightclub. The long line was filled with beautiful women in backless dresses. All of them too old for us. But Pedro isn't one to give up. "I'll see if I can get some girls. If not, we'll leave as soon as you warm up." 5 minutes, <em>he should back soon</em>. 10 minutes, <em>nothing</em>. 15 minutes, <em>maybe he was successful?</em> 20 minutes, <em>oh here he comes.</em></p>

<p>"What happened?"</p>

<p>"I started talking with some girls and they were all into me until they asked me how old I was. I told them, 'Oh, I'm 19'......They were 25"</p>

<p>"Damn."</p>

<p>Pedro shrugged and asked me, "So, can you drive?"</p>

<p>"Yeah, let's go"</p>

<p>We walked back past the long line. I turned my head and saw a hot redhead walking by with some guy. Long legs, short black dress.</p>

<p>I wondered what was under that dress. Was she wearing panties? Boy shorts? A thong? Was she even wearing underwear? The whole thing was in slow motion. We made eye-contact and exchanged smiles. The moment passed and I stared happily into space, satisfied with my encounter.</p>

<p><strong>WACK!</strong></p>

<p>I felt a sharp pain in the back of my head. I slowed down and Pedro ran in front of me. <em>Damn it, why does he hit me?</em></p>

<p>"Did you see that girl?" He hunched over and put his hands on my armrests, looking at me with a sly smile.</p>

<p>"Which one?" I was confused. There were so many.</p>

<p>He bowed his head in disappointment</p>

<p>"This hot punk chick walked by, looked down at you and gave you a seductive look." He gave his best imitation.</p>

<p>"Really?"</p>

<p>"You didn't see her?"</p>

<p>"No."</p>

<p>"Goddamn it, lets go."</p>

<p>I was determined to make it back to the hotel without needing to be pushed. I had only enjoyed it before because of the amusement Rodrigo and Pedro provided. But I hate being pushed. There are only two things I can control in my life-- a computer, and my chair-- and I cling to them like a monkey to a tree branch. Sometimes I think they're the only things keeping me sane.</p>

<p>I stopped in front of the rotating doors and took the deepest breath my ventilator allowed me. <em>I'm gonna make it this time. I'm gonna make it this time. I'm gonna make it this time.</em> I told my thumb to push the joystick forward and I was off. The chilly midnight air pierced through the three layers of clothing my mom had forced on me and even my camouflage body jacket was powerless against the prickly needles that seemed to come with it. Pedro and Rodrigo stayed a few steps ahead to derail the legion of idiots that would bump into me otherwise. This was scary because if anything happened, like if I got unplugged from the ventilator, they would not have heard me due to all the street noise.</p>

<p><em>Motherfuck, it's too fucking cold. This is Vegas it's supposed to be hot. Ooooo look, "Escorts. Beautiful girls waiting for you." I'll have to memorize the number. 555-89...   ...goddamn it you whore! PAY ATTENTION TO WHERE YOU'RE GOING! Jesus fucking Christ. Next time I won't avoid you, cunt. Fuck, I better speed up I'm losing them. MOVE ASSHOLES, CRIPPLE COMING THROUGH. Why do I avoid them? I should just hit them full speed. That'll teach them. Fuck, my hand hurts. There's the Aladdin. Almost there.</em></p>

<p>My hand started to numb. It would stop responding and my chair would stop. I'd make every muscle in my hand inch forward. My chair was in a Stop N' Go cycle all the way to the hotel. We went up to the 18th floor and walked back to our room. My mom popped up from the couch the moment we opened door.</p>

<p>"How was it?"</p>

<p>"I just want to lie down." I said.</p>

<p><em>I'm not coming back until I'm 21</em>, was my last thought before drifting off to sleep.</p>]]>

</content>
</entry>
<entry>
<title>Does it hurt? What&apos;s it feel like?</title>
<link rel="alternate" type="text/html" href="http://www.loveonwheelz.net/archives/does_it_hurt_whats_it_feel_lik_1.phtml" />
<modified>2008-03-21T03:21:09Z</modified>
<issued>2008-03-20T14:33:23Z</issued>
<id>tag:,2008:/76.6573</id>
<created>2008-03-20T14:33:23Z</created>
<summary type="text/plain"> Q.Does it hurt? What&apos;s it feel like? A. This is tough. The disease itself doesn&apos;t hurt, but the things it causes do. For example, Scoliosis is a common side effect of MD, so I&apos;m in constant back pain while...</summary>
<author>
<name>HotWheelz</name>

<email>therealnotfaggyhotwheelz@gmail.com</email>
</author>
<dc:subject>FAQ</dc:subject>
<content type="text/html" mode="escaped" xml:lang="en-us" xml:base="http://www.loveonwheelz.net/">
<![CDATA[<p><em> Q.Does it hurt? What's it feel like?</em></p>

<p>A. This is tough. The disease itself doesn't hurt, but the things it causes do. For example, <a href="http://en.wikipedia.org/wiki/Scoliosis" target=_blank>Scoliosis</a> is a common side effect of MD, so I'm in constant back pain while in my chair. I also get numb legs all the time, so I have to be repositioned regularly.   I can only go about two hours in my chair without being in pain/discomfort. The only time I'm really comfortable is in bed, and even then I have to be in the perfect position, which differs from day to day.</p>

<p>Oh, and I often accidentally sit on my balls a lot, but I attribute that more to their size than to MD.</p>]]>

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